RESEARCH TRENDS ON PARENTAL READINESS IN RAISING CHILDREN WITH DOWN SYNDROME: A BIBLIOMETRIC ANALYSIS
DOI:
https://doi.org/10.46773/arv9q719Keywords:
Down syndrome; parents; parental support; caregiving; bibliometric analysisAbstract
This study examines the intellectual structure and research trends of social science publications on Down syndrome parents. Scopus data on English-language sociology journal articles was used for a bibliometric analysis. Descriptive indicators and visualization were used to identify publication trends, prolific authors, leading countries, influential journals, and dominant research themes. Research output on Down syndrome parental issues has gradually increased, indicating academic interest. Developing nations contributed little to most publications. Keyword analysis revealed parental support, family adaptation, caregiving challenges, and social inclusion as research themes. The findings show gaps in cultural context and parental readiness research in non-Western societies, despite growing literature. This comprehensive review of existing research provides valuable insights for future Down syndrome family studies and policy development.
References
Alnahdi, G. H. , & S. S. (2021). Inclusive education and parental perspectives on children with disabilities. International Journal of Inclusive Education.
Baas, J. , S. M. , P. A. , C. G. , & K. R. (2020). Scopus as a curated, high-quality bibliometric data source for academic research in quantitative science studies. . Quantitative Science Studies, 1(1), 377–386.
Brown, R. I. , & R. F. (2020). Family quality of life and support for parents of children with Down syndrome. . Journal of Policy and Practice in Intellectual Disabilities, , 17(2), 123–134.
Cuskelly, M. , & G. P. (2019). Parental stress, coping strategies, and family adaptation in Down syndrome. Journal of Intellectual Disability Research, 17(2), 697–708.
Cuskelly, M. , & G. P. (2020). Parental adaptation following the diagnosis of Down syndrome. . Journal of Intellectual Disability Research, 64(8), 617–629.
Donthu, N., Kumar, S., Mukherjee, D., Pandey, N., & Lim, W. M. (2021). How to conduct a bibliometric analysis: An overview and guidelines. Journal of Business Research, 133, 285–296. https://doi.org/10.1016/j.jbusres.2021.04.070
Hodapp, R. M. (2017). Parenting children with Down syndrome: Stress, adaptation, and family functioning. . In M. L. Wehmeyer & K. A. Shogren (Eds.), Handbook of Research-Based Practices for Educating Students with Intellectual Disability , 145–160.
Lim, Y. H. , L. J. , & P. S. (2023). Parental well-being and quality of life among families raising children with Down syndrome. Disability & Society, 38(2), 234–251.
Marchal, J. P. , V. O. H. A. , & M.-S. H. (2021). Parenting stress and psychosocial adjustment in parents of children with Down syndrome. . Research in Developmental Disabilities, 117(104001).
Rahman, F. A. , & A. N. A. (2025). Parental readiness and empowerment in raising children with Down syndrome in Southeast Asia. Asian Social Work and Policy Review.
Van Riper, M. (2020). Family adaptation and management of Down syndrome. Journal of Family Nursing, 26(3), 179–191.
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Copyright (c) 2025 NURUL SALLYNA ROSTAM, Dr. Syar Mezee Mohd Rashid
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